So...I
am positive (and despite my sometimes – well often – dark writing
I am actually genuinely usually quite upbeat. But what I mean is I am positive for Lyme Disease). I
also have some co-infections. And just BTW this background choice was here long before I even thought I might have Lyme - subconscious instinct maybe?
Here's what
I can tell you about Lyme so far, it's likely that the
Babesia (a Lyme co-infection I have) is for me the more acute, more dominant
infection and therefore I am displaying more obvious symptoms of that
- namely increasingly bizarre neurological symptoms.
Let's start with the one I like to call the dramatic interpretation of the thesaurus.
That is a combination of a few: weird dance style cheer leading
moves, while repeating five alternate ways of saying something
(because I can't find the exact word or phrase I want to use)
interspersed with musical Tourettes and cheer freeze movements
punctuated by clapping, smacking or stomping.
The catalogue of
walks: the bless this wall walk, where I walk
up the hallway facing the wall holding onto the new bar (imagine a
ballet bar running the length of the hall) pressing my face against
the wall every few shuffles, the crab walk, the grapevine, the ass
first around corners manoeuvre, the squat walk, the shuffle, the
child learning to walk walk, the drunk walk, the I have to turn three
times at speed before I walk walk and the going down the stairs walk.
Can you believe there is no moonwalk in that mix?
Then
there is noddy: this is where I suddenly drop to the floor or lose
consciousness mid speaking, showering, walking, sitting... just drop
like a stone. The strange thing is though that I'm not fully
unconscious it is more like I am frozen, but I am not conscious
either as time is transient and I can't really tell how long has
passed.
And
the Dick Van Dyke tribute: where I suddenly start talking with a
weird version of an accent, whether it be Chinese or Italian or Kiwi.
Then the related and usually simultaneous symptom of volume control...
where I either am shouting words at random or suddenly whispering
something while cupping my hands to my ears or forehead (apparently,
because that's where I speak from). Or the reverse it sounds like anyone speaking to me is not only speaking with an accent, but in another language and I simply cannot understand them.
Slow motion interpretive dance: this is a pretty frequent daily occurrence where my body moves of it's own accord. Usually my neck and head, arms and torso doing free form interpretive dance or a series of moves - the salute where I repeatedly bang my head like I am emphatically saluting, the pick me manoeuvre where my left hand keeps shooting up in the air, the double pick me - where both hands go straight up, the bow down, the chin up head shake... there is too many to count. The tempo of this jig is dependent on what's causing it. If it is just my usual brain farts, it's slow. If it's in reaction to chemicals this turns into a high speed disco.
Language
and singing portion of the show: where I have musical sound effect
style Tourettes. I sing parts of sentences or make beat box musical
noises – not well I might add. Or strangely I sing whatever I'm
saying to the tune of a song or lullaby. Highly irritating. Oh and
MA rated inappropriate Tourettes too. Which makes Ma highly
uncomfortable cringey and full of shhhhhhhs. Unfortunately the more
I try to suppress the urge to speak/yell/sing the worse it gets (plus
a migraine)... so f$%k it, suck it, duck it.
Oh
and last but not least who can forget (mind the pun) the amnesia or dementia symptom: where I start calling my sister or
mother or even my father – that girl... you know that, person that
lady. I call Mum Marzi (my nickname) and cannot for the life of me
remember the cats' names (Tobey & Cooper) so end up yelling out
things like furry little people or pooper or Cobey or Tooper or
f#$kingwhathisname. And the highlight is forgetting who I am, where
I am and what's happening which seems to frequently result in me
yelling, “what?” in people's face, “what's happening?” at the
top of my lungs. “What am I doing?” “who?” “what?”
The last time it happened quite dramatically I was (insert sarcastic context here) conveniently at
the doctor's office. Where thankfully he didn't miss a beat in the
face of my thunderous questioning of all these pressing theological
matters. “what?” “what is HAPPENING?”
So
Lyme is absolutely not my favourite colour. My school uniform was
two shades of green... and I hated it then. Now I am stuck with Lyme. At least
for now. In the meantime I will be performing daily. A Lyme variety
show – 'It's not easy being green'. Come all takers.
Well I am glad you have a sense of humour about it all. I am feeling a little more sad about my diagnosis, but reading this has actually cheered me up some LOL. Thank You!! xoxo
ReplyDeleteI am sorry darling. I so understand.
DeleteGlad I cheered you a little.
Love xxxx
Always hated lime green too. You're amazeballs babe - your writing, your way of looking at the world and most of all your resilience. Cannot wait to see the treatment work and for you to improve, can't even imagine what you'll get up to then...watch out World. Love you. XXOO
ReplyDeleteYou too. We is going to take over the world.
DeleteLove you xxxx
It is lovely to see you writing here again, Marzi - you have a way with words that brings this terrible predicament to life in an extraordinary and vital way x
ReplyDeleteThank you I miss it. I don't quite have the ease I did but it's nice to write again. Hoppy easter xxx
Delete