Life like this

A life lived with MCS, Lyme & and ME. This is how it is.

Friday, 20 July 2018

GoFundMe Update - Flashback to my first years vs Now

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Thank you for helping me get a part for my sleep apnoea machine, medications and food. I keep saying it's like the start but you do...
Monday, 5 March 2018

Marionettist's Escapee

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Trapped in a deadened  slumber, my body sinks into the bed. I am awake but my brain is only dimly aware of the world, far away, muffled thro...
Wednesday, 5 July 2017

Narwhal

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My lungs hungry for air, my eyes sticky and heavy, laden with sleepless restlessness and a pain so bone deep it feels like my marrow is achi...
5 comments:
Thursday, 15 October 2015

Stitched Up

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Someone took an ice cream scoop and scooped out all of me. Hollowed me out and made me an empty, echoing, lonely space. With slight o...
6 comments:
Wednesday, 21 January 2015

Paper

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I am flat. So flat I am paper, brittle and dry, devoid of life. Just here. Existing. I want to abundant colourful life. Alas all I do ...
12 comments:
Sunday, 14 December 2014

Don't Give Up

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Dear Me/Amara (aka Marzi to my friends or variations of that – Marzipan, Marzipants, Marz, Marzsticles, Mara – or to my family RaRa...
6 comments:
Tuesday, 21 October 2014

Fling your love to the stars

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I have been unable to articulate to you what I am feeling. I keep writing it and feeling it is not enough, she is so beautiful my Kae, so ...
8 comments:
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Marzi
I am 'living' with MCS, Lyme and ME and it is a fight every day. This is how it is.
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